2019-10-27

110) Thanksgiving (beter late than never)

I started writing the following post after dinner on Thanksgiving Day. I was interrupted by J, who wasn't falling asleep with my wife, and requested that I go upstairs to snuggle with him. Since then, I've had maybe 3 or 4 nights where I haven't passed out while putting one of the boys to bed, and I haven't been able to finish up. It's late, but it's posted now.

It’s the second Monday in October, so that means Canadian Thanksgiving. Or, as we like to call it here in Canada: Thanksgiving. It’s fairly similar to the Thanksgiving celebrated in America, but our Thanksgiving is on a Monday versus the American Thursday, and we have a 3-day weekend instead of the American 4-day weekend. It’s not a big travel weekend like it is in America, nor does it have one of the biggest shopping days of the year like in America. It’s a time to reflect, and be thankful for what you have.

I’m thankful for my wife. She carried & birthed our two boys, and we’re partners in the craziness of raising a family; I couldn’t do this without her.

I’m thankful for my two boys: J, and E. They have both caused us more than our fair share of worry, and anxiety (especially you, E), and there’s been days where I feel I can’t do it anymore, but their smiles, giggles, hugs, and snuggles make up for it. They have their faults, and they sometimes drive me batty, but I love unconditionally them, and I’d do anything to help to see them succeed in life.

I’m thankful for SickKids. It is truly a world-class children's hospital, and we are so lucky to have it here in our back yard. It’s not necessarily a place you think about having to go when you bring a child into the world, but if you do eventually need it, it’s great that it is there.

I’m thankful for the dedication, hard work, and compassion by the nurses, doctors, staff, and volunteers during the care E’s received during his leukemia treatment. These people encounter so many stories of heartbreak, of tragedy, and of triumph too, and they come to work ever day and deliver professional, compassionate care to children who were dealt a bad hand in life.

I’m thankful for POGO, the Pediatric Oncology Group of Ontario, and the satellite cancer clinics they have set up in various locations around the province. As much as I think SickKids is a wonderful hospital, we have been able to get many many many incidents of bloodwork, and chemo at our satellite clinic in Scarborough, saving us time, gas, and money by not having to travel to SickKids for every appointment.

I’m thankful for Alex, Lynn & Kirsty, the Child Life Specialist, RN, and Nurse Practitioner respectively at our satellite clinic in Scarborough. These three women are a great resource for anyone in the east end of the GTA who has to take their child in to be treated for cancer. They are wonderful, caring people, and they bring a ray of sunshine into the lives of families who have to go through one of the worst things imaginable.

I’m thankful for the support of strangers, friends, and family while we walk this difficult path. Monetary donations, gift cards, meals, and toys for the kids are just a few of the ways that people have helped out. Grandparents & family who have supported us with child care services, have enabled us to get to SickKids for early appointments, go to work, and get out of the house for a small break from the kids in order to keep some semblance of our sanity.

I’m thankful for Hearth Place in Oshawa, its staff, and all of the other childhood cancer families we have met along the way. Talking to other people who just “get” it has been great for reducing stress and worry. It’s nice to see familiar, smiling faces at our monthly parent support meeting, and to get updates on how their children are progressing & to compare notes on side effects such as nausea, vomiting, or rashes. It may not happen every month, but there is usually one parent/family at the meeting whose child is finished treatment. It’s heartening to see them come back, and to continue to support the community. Seeing other families who have been through treatment, and have come out the other side is like a beacon of light and hope in a long dark tunnel. It also may not happen every month, but there are new families who will show up. I don’t ever wish for other parents to join our club, but it’s also nice to meet new families who aren’t very far in treatment. It’s cathartic to share our experiences with them, and to provide support & hope to others new to childhood cancer.

I’m thankful for all of the great organizations out there who are supporting children, and families. There are too many to name them all, but a few such organizations are: Camp Ooch, Kids Up Front, Million Dollar Smiles, The Super Sophia Project, and Make-A-Wish Canada.

I’m thankful we live in Canada, with our universal health care. We’re out of pocket on some things such as medication, transportation to & from hospitals, lunches, etc., but it’s manageable. We’re not in a situation where we have to fight with private health insurance to cover basic costs of treatment, nor do we have to worry about having to sell, or lose the house because of astronomical medical bills.

I’m thankful for anyone who has ever donated, organized an event, or raised awareness of childhood cancer, and how it needs more funding for research so there can be new, more successful, and less harmful treatment options for these kids.

I tend to be a negative thinker, so it’s good to do an exercise like this once in a while. It can change your whole world view by being appreciative of what you have, and seeing things in the light of glass half full.

2019-10-02

109) Mega mergers

Some big news today....Make-A-Wish Canada, and the Children’s Wish Foundation of Canada announced they were merging, and will be known as Make-A-Wish Canada. Their aim is to combine their organizations to leverage their resources with the goal of fulfilling every eligible child’s wish across the country.

Back in the summer, the two main charities in Canada that advocate for childhood cancer, Coast to Coast Against cancer Foundation and Childhood cancer Canada announced their own merger. Their goal is to combine their efforts to create more positive outcomes for children, adolescents, and young adults who have been diagnosed with cancer.

Just last week, Camp Ooch, and Camp Trillium announced their own merger, “aimed at furthering their shared goal of reaching every child and family affected by childhood cancer across Ontario. They hope that a combined organization will enable them to better support families, have camps in more communities including 8 hospitals in Ontario, as well as bringing more families & kids to overnight camp.

I’m optimistic that this will do nothing but good for the childhood cancer community. If, by merging, they are able to combine their organizations to leverage their combined resources to do even more good, and help even more children and their families, then this is great news.

I was surprised by the first announcement involving Coast to Coast Against cancer merging with Childhood cancer Canada. I was floored by the announcement involving Camp Ooch, and Camp Trillium. And today, I’m blown away by Make-A-Wish Canada & Children’s Wish Foundation of Canada’s merger. In fact, if I woke up tomorrow with my head sewn to the carpet, I wouldn't be more surprised than I am now.



2019-10-01

108) Two thousand words

A quick, photo based post tonight. I tend to write more than posting pictures, but tonight I’m not feeling very write-y.

The first pic, I shamelessly stole from another parent we know from our satellite clinic, and also from Hearth Place. Her daughter is only 4 days older than E, and she was one of the first people we met that also had a toddler who was in treatment. The picture, and the caption are all hers, I take absolutely no credit for either of them, but it was too cute not to post. Our satellite clinic hosted a Pancakes & Pyjamas fundraiser last Wednesday. They were selling plates of pancakes for $5.00 to raise money for POGO, a group of pediatric oncologists who "champion childhood cancer care on behalf of the childhood cancer community".

....and one day two superheroes met....they became friends, and fought their battles together 💗

The second pic comes from J’s Terry Fox Run. He had it at school last week, and this year, he was running for a number of special little superheroes. Four children of the six named are still fighting, while the other two children have unfortunately, passed. Gone, but not forgotten. Loved, and missed dearly. We need to do better for these kids.

Terry Fox Run 2019